Time: Medicaid Was the Only Insurance That Tried to Save My Daughter

Content

Time: Medicaid Was the Only Insurance That Tried to Save My Daughter

From the start, each of my twins, Roan and Lula, were different in every way. In 2010, Roan burst onto the scene with a garrulous yelp; his sister was shatteringly silent. The reason became clear in time. Lula had a de novo genetic mutation, which means that it was not inherited and therefore could have afflicted any baby. It disabled her in a multitude of ways, none of which showed up in any prenatal tests or sonograms. Suddenly, we entered two parallel universes: parenting a healthy child and parenting a disabled child, and, with them, forced into the morass of American healthcare.

Continue reading . . .